Living with OCD

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Five years ago, it was extremely difficult for people managing obsessive-compulsive disorder (OCD) to find specialized treatment—particularly exposure and

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Life is a narrative, a story. That's how each of us perceives existence. We envisage ourselves as the protagonist, casting the psychological and metaphysical challenges we face into archetypal roles that humanity has been using since time immemorial. In our lives, we all have entities and individuals we perceive as allies, mentors, or shadows. We're all engaged in the same hero's journey, each with our unique story to share. The journey I've shared with you today details my struggle with Obsessive-Compulsive Disorder and highlights key experiences that have provided me with precious learning opportunities.

You are not alone. Millions of people just like you struggle with the same condition. OCD is vicious and unrelenting, targeting everything you love and care about. But you can do more than just survive with OCD: you can thrive. There are so many wonderful therapists, psychologists, and psychiatrists ready to help you, and with consistent effort and a long-term approach, you can implement life changes that will get you back on the right track.

I used to think that having OCD meant that I was weak. But now, that has changed. I know how strong I am. Through seeking help I learned that I am resilient. I know and understand myself so much better now. OCD really forced me to figure out who I am and what I value. I have a renewed vision of what is strength and what is weakness now. I am far more compassionate and empathetic. I no longer feel the need to put on a mask and pretend to be okay. I have been in the depths of despair and darkness. And I have survived. I have even thrived.

Over time the theme of my OCD and its spikes changed, from relationship to existential OCD but they’ve all had one major feature, uncertainty. Not knowing the outcome of some event, whether I am with the right person, or whether I’m even okay.

I would encourage anyone and everyone who isn’t aware of just how serious of a condition OCD can be, to educate themselves on this. This is a real disorder and a debilitating one for so many people. Be open to what others with lived OCD experience have to say about this. It may be difficult to understand or to put yourself in their shoes, but that's okay. What they need is your support, just knowing you are there for them and care enough about them to be there for them can mean a world of difference. 

I wish I could say that at age 24, I was cured, that I never experienced distress from my OCD again. The truth is more complex and compelling. My OCD has taken many different forms throughout my life-whether it is that I am with the wrong person, or if I am making a terrible mistake at work, and everything in between. But my life has become so much more expansive since I received help for my OCD. Though I still get caught in compulsions and rituals and safety behaviors, I don't stay stuck as long. I still see a therapist at NOCD to help me through all the ways that my OCD has shifted over the years. Most importantly, my OCD has not kept me from living a beautiful life. I met and married an amazing man. I reconnected to art, writing, and advocating for people with OCD like myself. I don't let OCD and fear dictate my life.

The key to reducing the power of these thoughts is not to run away from them, not to push them away, and not even to challenge them. It turns out that the most effective way we’ve found to deal with it so far is to simply sit with The Thoughts, and let them say their piece. Almost as if you were dealing with a child having a little temper tantrum, you just let all of the terrible, anxiety-inducing thoughts rage as they will, until they tire themselves out. While under guided supervision, you are exposed to a situation that triggers intrusive thoughts, and throughout you must self-assess your anxiety levels. What are you feeling as your brain presents upsetting ideas to you? Be honest with yourself, and track how you feel as you continue. Eventually, though it may take quite a while, you’ll notice the anxiety will start to decrease. A quiet observation of the situation will lead you to a calmer state. Give no response except for acknowledgment of what you are going through. You, in a sense, build up a tolerance to the anxiety The Thoughts provoke. Eventually, they become nothing more than what they always truly were, even if they had once felt like something so much worse. Just thoughts.

OCD was a result of my reaction to thoughts that were abhorrent to me. Unfortunately, trying to force them out of my head only meant I thought about them more. With my therapist’s help, I started to practice exposure and response prevention therapy (ERP). It was crazy how quickly my intrusive thoughts receded — I got to a point where I could remain calm and completely ignore these thoughts, even laugh at their absurdity, instead of being frightened by them. 

OCD no longer controls my life, my behaviors, and my family. OCD doesn’t have a crippling grip on my life any longer. I learned that I likely had OCD most of my life.Recovery is a process. It isn’t as though the OCD is suddenly gone, but I am recognizing it more. I am not allowing it to be in control. My advice to anyone suffering from this is to get help right away, don’t put it off. Face it head-on as hard as it is. Don’t give up, keep pushing forward. You will be so happy that you get treatment. There is no such thing as a ‘perfect’ recovery or treatment. When I have bumps in the road, I get back into therapy and get a quick refresher. You are never all the way back to zero, you cannot unlearn all of the tools you have been taught. You don’t lose progress. 

I was once tormented by OCDs “What ifs” and left in a state of panic, despair, and ruin, wondering if I would ever get my life back again. While I am not here to say that your life will always be sunshine and rainbows, I will tell you that with hard work and perseverance, you can live a completely healthy, and normal life.